About Johnny Koon

The Johnny Koon Pediatric Brain Tumor Research Fund was founded in 2011 in memory of Johnny Koon who passed away from brain cancer in 2005.

Johnny Koon, at the age of nine years old, was diagnosed with an ependymoma brain tumor. He fought a five year battle with brain tumors and had a "bring it on" attitude with every challenge. His bright and shining smile warmed the hearts of everyone around him. He never complained and never gave up. Throughout all of his battles, his faith in God never faltered. At the age of fourteen, Johnny lost his battle, but overall won the race.

His love and ultimate care of everyone around him has challenged his family to do more for others.


Johnny’s “bring it on” attitude inspired the organization to raise money for brain tumor research at West Virginia University’s Ruby Memorial Hospital. This research fund is not only in memory of Johnny, but a tribute to all of the families who have battled pediatric brain tumors and need that spark of hope. The Johnny Koon Pediatric Brain Tumor Research Fund’s mission is to help families at WVU Children’s hospital

and serve as an ally to the community.

 

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The Johnny Koon Pediatric Brain Tumor Research Fund

The Johnny Koon Pediatric Brain Tumor Research Fund was founded in 2011 to raise money for brain cancer research

right in our home state, West Virginia.

 

What started as a few dozen people pitching in money and making bracelets has turned into giant, family-friendly fundraisers

that hundreds of people attend and help to raise money, while also building community.

Our board is made up entirely of volunteers and 100% of the proceeds from every donation goes to WVU Medicine Children's. 

Board:

Michele Koon

John Koon

Debbie Koon-Friel

Becky Digman 

John Hunt 
Lori Hunt 

Tom  Koon

Shalane Koon

Ashley Koon

 

The Mission of the Johnny Koon Pediatric Brain Tumor Research Fund is

to raise money for brain tumor research at West Virginia's WVU Medicine Children's.

We hold family-friendly, accessible fundraisers that build community

as well as raise the much needed funding to continue on the path to finding a cure. 

Our Mission